Interview made by U2FP.org, per email, in March 2019, for U2FP newsletter, **********************************************, We continue our series of reflections from the SCI Community on the NIH conference held this past February – SCI2020: Launching a Decade for Disruption in Spinal Cord Injury Research. You took a big step last December and published an open letter to Lyn Jakeman of the NIH, one of the principal organizers of the gathering. The awareness day helps people to understand why and how spinal cord injuries affect people, and what treatment and care is available and needed. The spinal cord runs from the brain down to the pelvis. The open letter to the NIH aimed to influence the agenda as a way to improve the outcome of the meeting. Secondly, since Lyn Jakeman said “the goal is really to NOT do things the way we used to do,” I would ask the NIH whether they consider facilitating the introduction of a more goal-driven environment, possibly under the form of a 3.0 project, to establish and implement a flexible roadmap to one or two key recovery goals for chronic SCI. I think the following items have been discussed but should be re-confirmed as priorities: Your letter mentions “an environment; an ecosystem and/or the setup of a flexible roadmap that will ease the development and testing of cutting-edge combination therapies…?” Can you describe in more detail what that environment/ecosystem might look like?
It is about making the impossible, possible.
Now more than ever we are reminded of the importance of research as the world faces the COVID-19 pandemic. Awareness Days Ltd | Company Number 11118824, National Novel Writing Month 2020 (NaNoWriMo), https://www.spinal.co.uk/spinal-cord-injuries-awareness-day-2018/. What do you see as the role of our community in the project? This is today’s situation and while we must accept it for the time being, we owe it to the younger generation to make use of all the tools at our disposal in order to try and create another future. Do you think that the organizers of the conference recognized your concern and addressed it? It really does take a village to cure paralysis and we are so grateful.
It’s just a matter of when.
Corinne is a dynamic and vocal activist in the international SCI Community who sent an open letter to Lyn Jakeman at the NIH ahead of the conference detailing her concerns. Spinal Cord Injury Awareness Day 2020 is held on May 15th. I am not a scientist, but I have been following SCI research for over a decade. Spinal injuries continue to be researched for treatment and cure, and in some cases it is possible to recover the use of the limbs and regain some activities, it depends on the injury, but usually it is a lifelong injury. We are aware of the significance of the situation and.
Or all? key enablers/accelerators such as an improved and standardized chronic animal model, better imaging, organoids, glial scar neutralization, motor-neurons replacement; A fast-track testing of combination therapies, guaranteeing both speed and safety; OUT OF THE BOX/“blue sky” approaches to explore breakthrough strategies. Your support can help find a cure for paralysis for all. The least we can do is to increase awareness and to demand more focus on regenerative research for chronic SCI. I believe that we, the SCI Community, are all “in charge” in a way. Select your desired option below to share a direct link to this page. And when I allude to functional recovery here, I should emphasize that I do not mean a compensatory measure or device; but rather, a full motor and sensory recovery!
People with spinal cord injury, particularly high level ones, are vulnerable to . This is welcome news for many who suffer spinal injuries, particularly patients with myelomalacia.
You can help people across the world to walk again. During the meeting, it was duly established that more focus should be put on chronic repair. A goal-driven and integrative approach, from bench to market (multi-functional teams that include researchers, clinicians, patients, and market representatives) to ensure the clinical and market relevance of research projects; Increased and optimized data sharing (both positive and negative results), in a virtual network/platform using modern digital technologies; The establishment of a flexible roadmap focusing on specific targets, such as: key functional recovery goals as mentioned earlier.
Interview with Corinne Jeanmaire. Dr Indra Neil Choudhury was recently, PCSRF is proud to announce that a research spin-off by the Spinal Injury Project team at Griffith University has been awarded the prestigious Marshall and, World-leading Griffith University research into the development of a cell-based therapy for treating spinal cord injuries has received a $5.7 million boost from the Queensland, In an effort to save people from spinal cord injuries or worse, this campaign encouraged sensible behaviour over the 2019-2020 summer and highlighted the risks, Community support is so important for a small charity like ours.
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